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#rarediseaseawareness

26 clips from 12 authors · 10.3M total views. Every clip opens with its own counters and comments.

Eight years since diagnosis, and Carter is showing us what resilience  — @iammrsnesbitt6.2M@iammrsnesbittIt’s hard to describe the heavy that comes with helping your child und — @wonderfullifewithbedford2.9M0:34@wonderfullifewithbedfordAside from the Botox injections, dentist appointments are quite possib — @wonderfullifewithbedford498.7K1:02@wonderfullifewithbedfordFundraising link in profile! Here’s a tale of our diagnosis process. # — @cw.illingworth263K4:53@cw.illingworthLETS TALK ABOUT SYMPTOMS 🗣️💜 This is just a super super concise list o — @a.li.as65.9K1:19@a.li.asMy little difference maker ❤️ #buildforbeddy #schwartzjampelsyndrome # — @wonderfullifewithbedford65.8K0:07@wonderfullifewithbedfordThis is a conversation I never imagined having with my baby boy. Seein — @araceagainstblindness48.6K0:13@araceagainstblindnessWhat do you guys think, does Spiderman eat spaghetti? Something you mi — @wonderfullifewithbedford39.6K1:19@wonderfullifewithbedfordThis might be one of the most tangible examples of supportive communit — @wonderfullifewithbedford35.6K0:41@wonderfullifewithbedfordSomeone get this to the @Indiana Fever, too 🫶🏻🤝 Let’s help @Unlimited  — @wonderfullifewithbedford34.7K1:11@wonderfullifewithbedfordThere are ZERO reasons we shouldn’t be talking more about inclusive pl — @wonderfullifewithbedford31.9K0:20@wonderfullifewithbedfordWhat would you do this summer if you knew it was the last one where yo — @araceagainstblindness26.1K0:24@araceagainstblindnessThere are many challenges in life when you have a child with a disabil — @firmeestilo7925.2K1:01@firmeestilo79Strong genetics over here 🫶🏻 Where will this inclusive journey take us — @wonderfullifewithbedford23K0:16@wonderfullifewithbedfordAt some point in your life, you have to decide to stop making excuses  — @wonderfullifewithbedford19.9K1:49@wonderfullifewithbedfordProudly, proudly, proudly repping @Brave Gowns, because every kid dese — @wonderfullifewithbedford18.5K0:24@wonderfullifewithbedfordThis is our story and our journey ❤️💚 #fy #viral #firmeestilo79 #dmd # — @firmeestilo7912.9K1:03@firmeestilo79That’s it. That’s the message. Life will fight as hard as it possibly  — @wonderfullifewithbedford9.3K0:50@wonderfullifewithbedfordDon’t come at me for pronouncing I am not a doctor!! STAR syndrome is  — @bandanna_mama9.2K4:58@bandanna_mamaHaving a rare disease is a constant battle. From diagnosis, access to  — @momentswithamarisa6.8K0:30@momentswithamarisaPart 8! Thank you all so much for following along for this series. Rar — @britt_and_bryce3.8K5:33@britt_and_bryceMarch is Developmental Disabilities Awareness Month, and it felt like  — @themrsyunii3.4K1:17@themrsyuniiRare Disease Day is upon us and we want to spread awareness for all th — @britt_and_bryce3.3K1:05@britt_and_bryceCalling all CMT patients! It’s CMT awareness month, and the time is NO — @cw.illingworth1.1K1:56@cw.illingworthFor years, Auto-Brewery Syndrome took everything from me. It took my c — @markmongiardo592@markmongiardoNo parent is prepared to hear, “This could spread to her brain.” Harpe — @harperscmavmjourney3181:04@harperscmavmjourney

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