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@wonderfullifewithbedford avatar

@wonderfullifewithbedfordwonderfullifewithbedford

Living rare and loving BIG with Schwartz-Jampel Syndrome #buildforbeddy

card updated Sep 2, 2026 · 0 of 11 clips with full stats · following 29 · 16,400,000 likes total

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Engagement—not enough data

Account summary

@wonderfullifewithbedford has 338,200 followers and 560 videos. Across the 11 parsed clips the average is 323,706 views; likes and comments have not been collected for this feed yet. An average clip reaches 96% of the follower count.

Followers
338.2K
history is still being collected
Engagement
—
clip pages not parsed yet
Average views
323.7K
median 32.2K
Likes per clip
—
waiting for the clip pages
Shares / saves
—
Posting rate
—
reach 96% of followers

Per-clip engagement for this profile has not been collected yet — only view counts came in with the feed. The clip pages are parsed on the next pass.

Profile completeness

5/6

Latest clips

11 collected
It’s hard to describe the heavy that comes with helping your2.9MIt’s hard to describe the heavy that comes with helping your child understand why they have limitations. I don’t want hi0000There are ZERO reasons we shouldn’t be talking more about in19.8KThere are ZERO reasons we shouldn’t be talking more about inclusive playgrounds. Play is where kids make friends, take r0000That’s it. That’s the message. Life will fight as hard as it6.3KThat’s it. That’s the message. Life will fight as hard as it possibly can to make you quit everything in front of you. I0000Strong genetics over here 🫶🏻 Where will this inclusive journ19.3KStrong genetics over here 🫶🏻 Where will this inclusive journey take us next? 👀 #buildforbeddy #schwartzjampelsyndrome #r0000At some point in your life, you have to decide to stop makin16.5KAt some point in your life, you have to decide to stop making excuses for why you can’t flip the script. We were dealt a0000Aside from the Botox injections, dentist appointments are qu412.6KAside from the Botox injections, dentist appointments are quite possibly the hardest appointments. Schwartz Jampel Syndr0000Someone get this to the @Indiana Fever, too 🫶🏻🤝 Let’s help @32.2KSomeone get this to the @Indiana Fever, too 🫶🏻🤝 Let’s help @Unlimited Play build more parks like we did for Bedford’s in0000Proudly, proudly, proudly repping @Brave Gowns, because ever16.9KProudly, proudly, proudly repping @Brave Gowns, because every kid deserves to feel special. The coolest part? YOU can sp0000What do you guys think, does Spiderman eat spaghetti? Somet38.1KWhat do you guys think, does Spiderman eat spaghetti? Something you might not realize is that Bedford’s condition (his 0000This might be one of the most tangible examples of supportiv34.6KThis might be one of the most tangible examples of supportive community for our boy 🥹 #buildforbeddy #schwartzjampelsynd0000My little difference maker ❤️ #buildforbeddy #schwartzjampel64.5KMy little difference maker ❤️ #buildforbeddy #schwartzjampelsyndrome #rarediseaseawareness 0000

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