@wonderfullifewithbedfordwonderfullifewithbedford

Living rare and loving BIG with Schwartz-Jampel Syndrome #buildforbeddy

card updated Oct 17, 2026 · 11 clips parsed · following 29 · 17,200,000 likes total

Engagement16.01%above average

Account summary

@wonderfullifewithbedford has 365,900 followers and 571 videos. Across the 11 parsed clips the average is 334,276 views and 48,996 likes. Engagement to views is 16.01%, which is above average for TikTok. On the newer half of the feed the response is holding steady (+0.16 pp). Posts roughly 0.5 times a week. An average clip reaches 91% of the follower count.

Followers

365.9K

+27.7K in period

Engagement

16.01%

+0.16 pp newer half

Average views

334.3K

median 34.7K

Likes per clip

49K

2.1K comments avg

Shares / saves

2.5K / 2.8K

0.84% of viewers save

Posting rate

0.5 / wk

reach 91% of followers

Latest clips

11 collected

There are ZERO reasons we shouldn’t be talking more about inclusive pl — @wonderfullifewithbedford

31.9K0:20There are ZERO reasons we shouldn’t be talking more about inclusive playgrounds. Play is where kids make friends, take r3.2K973973

That’s it. That’s the message. Life will fight as hard as it possibly — @wonderfullifewithbedford

9.3K0:50That’s it. That’s the message. Life will fight as hard as it possibly can to make you quit everything in front of you. I47417119

Strong genetics over here 🫶🏻 Where will this inclusive journey take us — @wonderfullifewithbedford

23K0:16Strong genetics over here 🫶🏻 Where will this inclusive journey take us next? 👀 #buildforbeddy #schwartzjampelsyndrome #r2.5K674161

At some point in your life, you have to decide to stop making excuses — @wonderfullifewithbedford

19.9K1:49At some point in your life, you have to decide to stop making excuses for why you can’t flip the script. We were dealt a2K811955

Aside from the Botox injections, dentist appointments are quite possib — @wonderfullifewithbedford

498.7K1:02Aside from the Botox injections, dentist appointments are quite possibly the hardest appointments. Schwartz Jampel Syndr80.6K3.5K1.4K2.3K

Someone get this to the @Indiana Fever, too 🫶🏻🤝 Let’s help @Unlimited — @wonderfullifewithbedford

34.7K1:11Someone get this to the @Indiana Fever, too 🫶🏻🤝 Let’s help @Unlimited Play build more parks like we did for Bedford’s in4K13597122

Proudly, proudly, proudly repping @Brave Gowns, because every kid dese — @wonderfullifewithbedford

18.5K0:24Proudly, proudly, proudly repping @Brave Gowns, because every kid deserves to feel special. The coolest part? YOU can sp66420219

What do you guys think, does Spiderman eat spaghetti? Something you mi — @wonderfullifewithbedford

39.6K1:19What do you guys think, does Spiderman eat spaghetti? Something you might not realize is that Bedford’s condition (his 2.7K8994114

This might be one of the most tangible examples of supportive communit — @wonderfullifewithbedford

35.6K0:41This might be one of the most tangible examples of supportive community for our boy 🥹 #buildforbeddy #schwartzjampelsynd1.3K551963

My little difference maker ❤️ #buildforbeddy #schwartzjampelsyndrome # — @wonderfullifewithbedford

65.8K0:07My little difference maker ❤️ #buildforbeddy #schwartzjampelsyndrome #rarediseaseawareness 5K9258115

It’s hard to describe the heavy that comes with helping your child und — @wonderfullifewithbedford

2.9M0:34It’s hard to describe the heavy that comes with helping your child understand why they have limitations. I don’t want hi436.5K18.5K25.3K27.8K

Engagement per clip

11 parsed clips · newest on the right · click a bar to open the clip peak: 17.2% ER

Apr 11Aug 27Sep 1

Date	Views	Likes	Comments	Shares	Saves	ER
Sep 1, 2026	31,900	3,152	97	39	73	10.31%
Aug 31, 2026	9,334	474	17	1	19	5.27%
Aug 30, 2026	23,000	2,538	67	41	61	11.50%
Aug 29, 2026	19,900	2,041	81	19	55	10.76%
Aug 28, 2026	498,700	80,600	3,547	1,389	2,304	17.15%
Aug 27, 2026	34,700	4,016	135	97	122	12.24%
Aug 27, 2026	18,500	664	20	2	19	3.71%
Aug 25, 2026	39,600	2,695	89	94	114	7.27%
Aug 22, 2026	35,600	1,264	55	19	63	3.76%
Aug 21, 2026	65,800	5,012	92	58	115	7.84%
Apr 11, 2026	2,900,000	436,500	18,500	25,300	27,773	16.56%