It’s hard to describe the heavy that comes with helping your child understand why they have limitations. I don’t want him to see SJS as a barrier in his life, but one that has launched him into his life’s purpose. God has a plan for Bedford’s life, but if you gain anything by being here with us… He has a plan for yours as well ❤️ #buildforbeddy #schwartzjampelsyndrome #rarediseaseawareness
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