@cw.illingworthCatherine W. Illingworth

Raising $6M to advance my son's gene therapy through clinical trials. 🧬

card updated Sep 19, 2026 · 12 clips parsed · following 753 · 1,300,000 likes total

Engagement26.11%above average

Account summary

@cw.illingworth has 51,100 followers and 181 videos. Across the 12 parsed clips the average is 64,409 views and 14,709 likes. Engagement to views is 26.11%, which is above average for TikTok. On the newer half of the feed the response is falling (−17.45 pp). Posts roughly 0.2 times a week. An average clip reaches 126% of the follower count.

Followers

51.1K

−100 in period

Engagement

26.11%

−17.45 pp newer half

Average views

64.4K

median 1.4K

Likes per clip

14.7K

495 comments avg

Shares / saves

1.6K / 887

1.38% of viewers save

Posting rate

0.2 / wk

reach 126% of followers

Latest clips

12 collected

#duet with @US Open #alexanderzverev As a rare disease mother in awe o — @cw.illingworth

1.3K0:56#duet with @US Open #alexanderzverev As a rare disease mother in awe of so many other rare disease mothers, this was 🥹🥹🥹164046

Calling all CMT patients! It’s CMT awareness month, and the time is NO — @cw.illingworth

1.1K1:56Calling all CMT patients! It’s CMT awareness month, and the time is NOW to sign up with the CMT Association to be notifi1267916

It’s CMT awareness month! #cmt #cmtawarenessmonth #raredisease — @cw.illingworth

1.3K1:59It’s CMT awareness month! #cmt #cmtawarenessmonth #raredisease21112612

At peace in the wake of a good transition to school. Amen. #rarediseas — @cw.illingworth

9261:35At peace in the wake of a good transition to school. Amen. #raredisease #backtoschool #cmt #welcometoholland 173825

An incredible rare disease mother built an AI tool that has meaningful — @cw.illingworth

8272:41An incredible rare disease mother built an AI tool that has meaningfully eased the path for my management of George’s ca88897

We were impressed. #raredisease #iep #genetherapy #backtoschool — @cw.illingworth

16.7K2:20We were impressed. #raredisease #iep #genetherapy #backtoschool 9562123529

Focused on the build. #raredisease #genetherapy — @cw.illingworth

1.3K1:39Focused on the build. #raredisease #genetherapy 20411109

Status report on our gene therapy! #raredisease #cmt #genetherapy — @cw.illingworth

2.1K2:03Status report on our gene therapy! #raredisease #cmt #genetherapy 41912217

First day of school jiiiitters (mine, not his) #raredisease #firstdayo — @cw.illingworth

2.2K1:42First day of school jiiiitters (mine, not his) #raredisease #firstdayofschool #disability 27617910

When contending with Sirens, play the more beautiful song. #theodyssey — @cw.illingworth

1.4K1:37When contending with Sirens, play the more beautiful song. #theodyssey #sirens #mythology 1928517

We can preserve this boy’s mobility and prevent a difficult and painfu — @cw.illingworth

480.7K0:38We can preserve this boy’s mobility and prevent a difficult and painful future - but we need $6M to do it! All contribut118.3K4K10.6K7.4K

263K4:53Fundraising link in profile! Here’s a tale of our diagnosis process. #raredisease #rarediseaseawareness #cmt #cmt4c 55.4K1.6K8.7K3.2K

Engagement per clip

12 parsed clips · newest on the right · click a bar to open the clip peak: 27.6% ER

Jul 9Aug 28Sep 14

Date	Views	Likes	Comments	Shares	Saves	ER
Sep 14, 2026	1,255	164	0	4	6	13.39%
Sep 8, 2026	1,120	126	7	9	16	12.68%
Sep 3, 2026	1,343	211	12	6	12	17.05%
Sep 3, 2026	926	173	8	2	5	19.76%
Sep 3, 2026	827	88	8	9	7	12.70%
Aug 28, 2026	16,700	956	212	35	29	7.20%
Aug 21, 2026	1,296	204	11	10	9	17.36%
Aug 21, 2026	2,143	419	12	21	7	21.09%
Aug 18, 2026	2,180	276	17	9	10	13.85%
Aug 6, 2026	1,422	192	8	5	17	14.42%
Aug 11, 2025	480,700	118,300	4,001	10,600	7,369	27.65%
Jul 9, 2025	263,000	55,400	1,645	8,674	3,160	24.99%