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#sanfilippo

20 clips from 5 authors · 43.7M total views. Every clip opens with its own counters and comments.

My PSA for the day #psa #specialneeds #stroke #sanfilippo #sanfilippos — @iammrsnesbitt22.7M0:32@iammrsnesbitt#onthisday #sanfilippo #sanfilipposyndrome — @valor_of_veda9.9M@valor_of_vedaLogan’s Sanfilippo journey so far #sanfilippo #lovelogan #refresh #mee — @love_logan074.7M2:14@love_logan07Our story is a long one, but the conclusion is that she has a terminal — @valor_of_veda2.3M@valor_of_vedaThe FDA APPROVED UX111 💜 #Sanfilippo #sanfilipposyndrome #fda #fyp #mi — @valor_of_veda1.3M1:10@valor_of_vedaSanfilippo brings challenges, but it’s not “taking over.” Logan is sti — @love_logan071.2M0:35@love_logan07Check out Logan’s sit-to-stand stander. Even though he can still walk, — @love_logan07756K0:35@love_logan07I have so many videos of Logan playing at the Harborside Fountain over — @love_logan07283.6K0:36@love_logan07Before we tackle the day, we stretch! #lovelogan #stretching #sanfilip — @love_logan07193K0:51@love_logan07Liv has a genetic disorder that mimics dementia in many ways, but it a — @saving_liv117.6K1:41@saving_livLoss of mobility is two fold in Sanfilippo, it’s not just the slow dec — @saving_liv77.1K2:11@saving_livSanfilippo Syndrome is a neurodegernative terminal genetic disorder, c — @saving_liv53.4K1:25@saving_livSanfilippo is a neurodegenerative disease that causes cellular damage — @saving_liv48.7K1:01@saving_liv@Hope for Lydia | Mama💜 I’m so proud of you too!!! 💜 #sanfilipposyndro — @saving_liv33.8K1:37@saving_liv#sanfilipposyndrome #sanfilippo #fyp #approved — @valor_of_veda6.8K9:09@valor_of_vedaI love her with my whole heart. She might never understand the differe — @valor_of_veda2.6K@valor_of_vedaFind the way to help in my bio 💜 #sanfilipposyndrome #sanfilippo #ohan — @valor_of_veda2.1K0:38@valor_of_vedaWe are not giving up on THIS generation of rare disease children! #rar — @cw.illingworth1.9K@cw.illingworth#onthisday #sanfilippo — @valor_of_veda1.4K@valor_of_vedaWe love her and all of her therapist 💛💜💛💜 #sanfilippo #physicaltherapy — @valor_of_veda848@valor_of_veda

Top authors

@iammrsnesbitt — TikTok avatar@iammrsnesbitt1 clip@valor_of_veda — TikTok avatar@valor_of_veda8 clips@love_logan07 — TikTok avatar@love_logan075 clips@saving_liv — TikTok avatar@saving_liv5 clips@cw.illingworth — TikTok avatar@cw.illingworth1 clip

Related tags

#fyp#sanfilipposyndrome#lovelogan#savingliv#dementia#onthisday#genetherapy#progression