@saving_livSaving Liv

Liv has Sanfilippo Syndrome, a terminal genetic disorder. Follow + share. 💜

card updated Sep 9, 2026 · 12 clips parsed · following 80 · 7,700,000 likes total

Engagement4.44%normal range

Account summary

@saving_liv has 200,600 followers and 441 videos. Across the 12 parsed clips the average is 330,743 views and 14,180 likes. Engagement to views is 4.44%, which is normal range for TikTok. On the newer half of the feed the response is rising (+7.86 pp). Posts roughly 0.1 times a week. An average clip reaches 165% of the follower count.

Followers

200.6K

+0 in period

Engagement

4.44%

+7.86 pp newer half

Average views

330.7K

median 33.2K

Likes per clip

14.2K

310 comments avg

Shares / saves

196 / 414

0.13% of viewers save

Posting rate

0.1 / wk

reach 165% of followers

Latest clips

12 collected

My daughter Liv has MPS Type 3, a form of childhood Alzheimer’s. While — @saving_liv

59.1K1:14My daughter Liv has MPS Type 3, a form of childhood Alzheimer’s. While I’d give anything for her to be able to grow up a8.5K32458165

My daughter has a terminal genetic disorder, which causes significant — @saving_liv

5.3K1:48My daughter has a terminal genetic disorder, which causes significant cognitive and physical impairments. I work part ti58711316

Liv has a form of childhood Alzheimer’s called Sanfilippo Syndrome. Li — @saving_liv

14.1K1:00Liv has a form of childhood Alzheimer’s called Sanfilippo Syndrome. Liv is unable to break down a specific cellular wast1.1K23819

Liv has a form of childhood Alzheimer’s called Sanfilippo Syndrome. Sh — @saving_liv

26.3K1:25Liv has a form of childhood Alzheimer’s called Sanfilippo Syndrome. She peaked at the age of 2 or 3 and has regressed ph3.3K12913103

My gym, Wisco CrossFit, hosted this wonderful event. I am so grateful — @saving_liv

8.4K1:17My gym, Wisco CrossFit, hosted this wonderful event. I am so grateful 💜 #sanfilipposyndrome #savingliv 90625413

Replying to @✝️Cute♡Lady♡Bug✝️ — @saving_liv

21.7K1:48Replying to @✝️Cute♡Lady♡Bug✝️ 1.2K242786

Childhood dementia is cruel, and can show how ugly it is, at any time. — @saving_liv

74.2K1:05Childhood dementia is cruel, and can show how ugly it is, at any time. We don’t take that for granted. Liv has mucopolys10.8K28328121

93.4K1:13Replying to @🍀lucky🍀🖖4K1371682

Liv has a terminal genetic disorder, and I take no days for granted wi — @saving_liv

39.8K1:15Liv has a terminal genetic disorder, and I take no days for granted with her 💜 #sanfilipposyndrome #terminalillness #fyp5.3K27141103

Liv has mucopolysaccharidosis type 3B, it’s a neuro degenerative termi — @saving_liv

26.6K1:11Liv has mucopolysaccharidosis type 3B, it’s a neuro degenerative terminal genetic disorder. Watching her regression in e2.3K491641

Also, I was pregnant with Liam during that whole work up 😩 #sanfilippo — @saving_liv

1.1M8:10Also, I was pregnant with Liam during that whole work up 😩 #sanfilipposyndrome #childhoodalzheimers #genetics #fyp 45.3K9708341.9K

You are my sunshine ☀️💜 #raredisease #sanfilipposyndrome #terminalilln — @saving_liv

2.5M1:00You are my sunshine ☀️💜 #raredisease #sanfilipposyndrome #terminalillness 86.8K1.5K1.3K2.3K

Engagement per clip

12 parsed clips · newest on the right · click a bar to open the clip peak: 15.0% ER

Feb 19Aug 19Sep 5

Date	Views	Likes	Comments	Shares	Saves	ER
Sep 5, 2026	59,100	8,488	324	58	165	15.01%
Sep 3, 2026	5,325	587	11	3	16	11.29%
Aug 31, 2026	14,100	1,059	23	8	19	7.73%
Aug 29, 2026	26,300	3,310	129	13	103	13.13%
Aug 26, 2026	8,392	906	25	4	13	11.14%
Aug 19, 2026	21,700	1,232	24	27	86	5.91%
Aug 17, 2026	74,200	10,800	283	28	121	14.97%
Aug 16, 2026	93,400	4,022	137	16	82	4.47%
Aug 14, 2026	39,800	5,345	271	41	103	14.21%
Aug 14, 2026	26,600	2,315	49	16	41	8.95%
Aug 1, 2025	1,100,000	45,300	970	834	1,880	4.28%
Feb 19, 2023	2,500,000	86,800	1,473	1,308	2,344	3.58%