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#savingliv

12 clips from 1 author · 590.9K total views. Every clip opens with its own counters and comments.

Liv has a genetic disorder that mimics dementia in many ways, but it a — @saving_liv117.6K1:41@saving_livSanfilippo Syndrome is a neuro degenerative terminal genetic disorder. — @saving_liv95.9K1:45@saving_livLoss of mobility is two fold in Sanfilippo, it’s not just the slow dec — @saving_liv77.1K2:11@saving_livChildhood dementia is cruel, and can show how ugly it is, at any time. — @saving_liv74.2K1:05@saving_livSanfilippo is a neurodegenerative disease that causes cellular damage — @saving_liv48.7K1:01@saving_livLiv has a terminal genetic disorder, and I take no days for granted wi — @saving_liv39.8K1:15@saving_liv@Hope for Lydia | Mama💜 I’m so proud of you too!!! 💜 #sanfilipposyndro — @saving_liv33.8K1:37@saving_livAnd truthfully this was a smaller milk order than usual 🤣 #sanfilippos — @saving_liv28.4K1:09@saving_livLiv has mucopolysaccharidosis type 3B, it’s a neuro degenerative termi — @saving_liv26.6K1:11@saving_livLiv has a form of childhood Alzheimer’s called Sanfilippo Syndrome. Sh — @saving_liv26.3K1:25@saving_livLiv has a form of childhood Alzheimer’s called Sanfilippo Syndrome. Li — @saving_liv14.1K1:00@saving_livMy gym, Wisco CrossFit, hosted this wonderful event. I am so grateful — @saving_liv8.4K1:17@saving_liv

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@saving_liv — TikTok avatar@saving_liv12 clips

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#fyp#sanfilipposyndrome#dementia#sanfilippo#genetics#terminalillness#milk#dropharness