Hey guys, just wanted to update you all… As you know, my petition to get SMA included in the newborn heel prick test has now reached over 150,000 signatures, which is honestly incredible. Thank you so much to every single person who has signed and shared it🥹 But there’s still a big problem… it will only cover 72% of England. That means some babies won’t be screened simply because of where they live. A postcode lottery like that just isn’t fair. Every baby deserves the same chance. On Monday 22nd June, the petition will be debated by MPs in Parliament. I’ll be there alongside Giles from SMA UK and we’re hoping this debate will help push for screening to be available for every newborn across England. We’ll be arriving at 5pm on Monday, and it would mean so much to see as many of you there as possible. We’d love to get a photo together outside Parliament before we head inside❤️ Please if you can, tag your MP in the comments and ask them to attend the debate and support universal newborn screening for SMA. The areas currently missing out on screening are: Bristol Cambridge Portsmouth Leeds Liverpool Oxford No baby should miss out because of their postcode. Let’s keep fighting until every newborn has the same opportunity. Thank you for standing with us every step of the way!
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