Yesterday, MPs debated my petition after more than 150,000 people signed in support of newborn screening for SMA. Thank you to everyone who signed, shared and supported this campaign. Every single action helped bring this issue into Parliament and gave families affected by SMA a voice. We've already achieved incredible progress: newborn screening for SMA is due to begin in October, giving babies the chance of earlier diagnosis, earlier treatment and a healthier future. However, only 72% of babies in England* will initially be covered. That means a baby's access to life-changing treatment could still depend on where they're born, and that simply isn't fair. Every baby deserves the same chance, regardless of their postcode. I'm now calling on @jamesmurray_ldn MP, Secretary of State for Health and Social Care, and @sharonhodgsonmp, Parliamentary Under-Secretary of State for Public Health and Prevention, to provide a clear timeline for when newborn SMA screening will reach 100% coverage across England and I'd welcome the opportunity to meet with ministers alongside SMA families to discuss the rollout and concerns raised during the debate. Early diagnosis saves lives, prevents irreversible damage and gives children the best possible start. No parent should ever wonder if their child missed that chance simply because of where they were born. Every baby deserves the same chance. Every life matters❤️
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