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#pkan

12 clips from 1 author · 7.8M total views. Every clip opens with its own counters and comments.

Why us? Why Madeline? #pkan #longisland #raredisease #madelinesmission — @madelines.mission

5.6M0:08@madelines.mission

Madeline’s first spend the morning with us! #PKAN #PKANDisease #PKANAw — @madelines.mission

2.1M1:36@madelines.mission

When your whole life flips upside down with a neuro degenerative diagn — @madelines.mission

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How fast time has gone 💔 #madelinesmission #raredisease #longisland #p — @madelines.mission

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Is that too much to ask? #madelinesmission #raredisease #longisland #p — @madelines.mission

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Oh how I wish I could go back to normal life 💔 #madelinesmission #rare — @madelines.mission

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I can’t even begin to imagine her losing her ability to walk 💔 #madeli — @madelines.mission

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#madelinesmission #raredisease #longisland #pkan #lovingloic — @madelines.mission

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Imagine fundraising for your child’s cure 24/7 but also trying to enjo — @madelines.mission

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Seeing the magic of Disney through your child’s eyes is worth every ce — @madelines.mission

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Girl dad things 💜 #madelinesmission #pkan #toddlermom #girldad #longis — @madelines.mission

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Forever my baby girl 💖 #madelinesmission #pkan #noahkahan #toddlermom — @madelines.mission

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@madelines.mission12 clips

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#madelinesmission #raredisease #longisland #toddlermom #lovingloic #pantothenatekinaseassociatedneurodegener #pkanawareness #rarebaby