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#skindisease

3 clips from 1 author · 64.5M total views. Every clip opens with its own counters and comments.

We don’t know what the coming days will bring, so today we took our ba — @ellianas_journey

46.2M1:05@ellianas_journey

Showing Ellie the world, one step at a time. These moments are everyth — @ellianas_journey

12M1:31@ellianas_journey

A moment without the foam. Holding Ellie like this feels like a dream— — @ellianas_journey

6.3M0:07@ellianas_journey

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@ellianas_journey3 clips

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#ourjourney #hospice #epidermolysisbullosa #butterflybaby #babytok #beach #sleep #ebjourney