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#ellaslittlesteps

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Ella was diagnosed with VACTERL Association found in about 1 per 10,00 — @bandanna_mama17.2M1:00@bandanna_mamaOstomies saves lives❤️ #ostomyawareness #chronickidneydisease #kidneyd — @bandanna_mama11.8M1:00@bandanna_mamaBath and ostomy change every other day On no bath days we do wipe down — @bandanna_mama9.6M1:30@bandanna_mamaDon’t come at me for pronouncing I am not a doctor!! STAR syndrome is  — @bandanna_mama6.8K4:58@bandanna_mamaWe are 52 days away from Ella’s next big surgery🤍 #mama #kidneydisease — @bandanna_mama4.7K1:01@bandanna_mamaIt’s hard to believe we’re going back in for a second time trying for  — @bandanna_mama4K1:02@bandanna_mama

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