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#raredisease

133 clips from 30 authors · 166M total views. Every clip opens with its own counters and comments.

When 2 out of your 3 kids are in wheelchairs, there tends to be some s — @shannonwillardson27.2M0:07@shannonwillardsonI will never not be terrified of this disease, but I don't let fear st — @alina_dravetwarrior21M0:33@alina_dravetwarriorCRPS Awareness day is Monday Nov 3rd! Please share this video and wear — @alina.sara19.2M1:24@alina.sara1Responder a @para_summer @thelymphologist @thelymphologist #aprendeent — @thelymphologist7.6M2:58@thelymphologistMeet Clementine… This is our story…#bonemarrowbaby #bonemarrow #bonema — @clementinesmomma7.3M1:57@clementinesmommaHere is a little insight into what life is like living with CRPS. Than — @alina.sara17.3M@alina.sara1You can’t have your cake and eat it (literally) 3 years today since we — @banne_86.4M0:09@banne_8Eight years since diagnosis, and Carter is showing us what resilience — @iammrsnesbitt6.2M@iammrsnesbittIt’s been a year since I posted this video, and so much has changed si — @mikeystonemusic6.2M1:32@mikeystonemusicWhy us? Why Madeline? #pkan #longisland #raredisease #madelinesmission — @madelines.mission5.6M0:08@madelines.missionAll that because of one tumor 🥲 #spinesurgery #sepsissurvivor #raredis — @laurenwaggs5.6M3:15@laurenwaggsAug 5, 2021 is a day I'll never forget 🩻🤍💉 #spinesurgery #spinetumor # — @laurenwaggs4.8M2:20@laurenwaggs#ChronicIllness #RareDisease #MentalHealthAwareness #AllByMyself #MyDi — @alexamariaestrella4.4M1:18@alexamariaestrella#ChronicIllness #RareDisease #AllByMyself #YouCanDoThis #symptoms — @alexamariaestrella4.2M1:33@alexamariaestrellaA big symptom of CRPS is allodynia, which is extreme sensitivity to to — @alina.sara13.9M2:38@alina.sara1STORY TIME!! what is IMAGe syndrome? so much information to share and — @alittlecha0s3.3M4:04@alittlecha0s#fyp #moonlightsonata #mcas #sicktok #zebrastrong #genetics #spoonie # — @tanzchelsea2.7M0:41@tanzchelseaOver the past decade, I’ve watched my mom fight Huntington’s disease. — @mariana4hd2.5M1:20@mariana4hdYou are my sunshine ☀️💜 #raredisease #sanfilipposyndrome #terminalilln — @saving_liv2.5M1:00@saving_livIf you can just sit with me for a minute, and understand our journey, — @jaxneedsahero2.4M2:10@jaxneedsaheroMadeline’s first spend the morning with us! #PKAN #PKANDisease #PKANAw — @madelines.mission2.1M1:36@madelines.missionSowas findet man nur ganz selten🫶🏻… #krankenhaus #himmelskind #sadd #l — @chrissysraredisease1.7M0:07@chrissysrarediseaseSie haben es so so lange ignoriert.. #fy #fyp #raredisease #foryou #gi — @chrissysraredisease1.7M0:15@chrissysrarediseaseDITL bedridden, best friends wedding edition 🤍 This is my daily realit — @alina.sara11.7M2:25@alina.sara1It’s so crazy to me to see how messed up i was immediately after the s — @persworld1.7M3:00@persworldWhen people see my mom now, they see Huntington's Disease before they — @mariana4hd1.4M0:21@mariana4hdmedical backstory part 1! tldr: my organs stop working and fall out. i — @phys.liz1.2M1:28@phys.lizmedical backstory part 2! tldr: my organs stop working and fall out. i — @phys.liz1.1M1:29@phys.lizmedical backstory part 3! tldr: my organs stop working and fall out. i — @phys.liz962.7K1:24@phys.lizI have been bedridden for almost 11 months now and I am so grateful th — @alina.sara1836.1K1:01@alina.sara1In honour of today being Rare Disease Day, I'm sharing part of my stor — @laurenwaggs811.1K2:14@laurenwaggsIf only it was just bad posture from a non ergonomic chair.. 🫠🩻 #spina — @laurenwaggs785.7K@laurenwaggsmany of you are new here and I am so so grateful! I get these question — @stellashon752.6K1:31@stellashonDay in the life bedridden, my birthday from hèll… This was one of the — @alina.sara1628.2K2:46@alina.sara1Just wanted to reintroduce myself and say hi because it’s been a while — @mikeystonemusic525K9:17@mikeystonemusicMy birthday from hell. This past week was my birthday and instead of e — @alina.sara1507.5K0:28@alina.sara1What I wish people understood about chronic pain. When you live with c — @alina.sara1482.6K2:43@alina.sara1Today is Trigeminal Neuralgia awareness day. TN is a disease that trul — @alina.sara1474.7K1:00@alina.sara1This @Huckleberry Hiking cascade cart is more than just gear.. It give — @foundnomads466.3K0:34@foundnomads💔❤️‍🩹 #spinesurgery #disabled #raredisease #nervedamage #spinalcordinj — @laurenwaggs464.4K0:08@laurenwaggsMy best friends surprised me with the sweetest gift ever! I am so grat — @alina.sara1370.9K1:15@alina.sara1CRPS takes over your body and leaves you suffering. There are a lot of — @alina.sara1344.9K2:56@alina.sara1Why I can’t eat… August is Gastroparesis Awareness Month, so I wanted — @alina.sara1302.7K2:52@alina.sara1Today is the 2 year anniversary of me getting my results. Which is cra — @mariana4hd299.3K2:09@mariana4hdThank you so much @Victoria's Secret for generously gifting me these a — @alina.sara1296.7K1:06@alina.sara1When you become sick you lose so much but it’s truly the little things — @alina.sara1269.9K1:28@alina.sara1These are 5 things I have found to be worth the investment while being — @alina.sara1269.3K1:56@alina.sara1I am so grateful to have the most amazing and thoughtful mom who tries — @alina.sara1265.5K0:19@alina.sara1Fundraising link in profile! Here’s a tale of our diagnosis process. # — @cw.illingworth263K4:53@cw.illingworththis is MY story + why I do what I do! #cleaneating #healthjourney #ra — @wearegirlswhoeat225.1K0:51@wearegirlswhoeatThe October slide is hitting me so hard and it’s not even October yet. — @alina.sara1216.8K2:14@alina.sara1Treatments fail to control seizures and better treatments are out of r — @alina_dravetwarrior204.1K0:39@alina_dravetwarriorThere is not a right choice when it comes to deciding to get tested or — @mariana4hd189.3K2:52@mariana4hdJust because there is no cure doesn’t mean I should stop advocating. C — @alina.sara1178.7K2:03@alina.sara1De un día para otro, mi vida cambió por completo. Pasé de estar bien a — @katriparra147.9K0:19@katriparraDay 11 of 31 Days of Nope: Creutzfeldt-Jakob Disease. Every once in a — @itsjillianrowe144.1K5:16@itsjillianroweCRPS & Chronic Illness have stolen my life. These diseases have left m — @alina.sara1128.6K1:00@alina.sara1One of my favorite games I used to play with my mom. #restinpeace #hun — @mariana4hd115.8K0:28@mariana4hdWe know so many of you love Brooke, and it wouldn’t be right not to te — @gigi_unbreakablebt101.2K1:03@gigi_unbreakablebtHow does TBCD affect Max? #TBCD #CureTBCD #tbcdawareness #leukodystrop — @miracleformax98.7K1:22@miracleformax

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@alina.sara1 — TikTok avatar@alina.sara119 clips@shannonwillardson — TikTok avatar@shannonwillardson1 clip@alina_dravetwarrior — TikTok avatar@alina_dravetwarrior2 clips@laurenwaggs — TikTok avatar@laurenwaggs5 clips@alexamariaestrella — TikTok avatar@alexamariaestrella2 clips@madelines.mission — TikTok avatar@madelines.mission11 clips@thelymphologist — TikTok avatar@thelymphologist1 clip@clementinesmomma — TikTok avatar@clementinesmomma1 clip@mikeystonemusic — TikTok avatar@mikeystonemusic2 clips@banne_8 — TikTok avatar@banne_81 clip@iammrsnesbitt — TikTok avatar@iammrsnesbitt1 clip@mariana4hd — TikTok avatar@mariana4hd5 clips

Related tags

#chronicillness#chronicpain#crps#fyp#chronicillnessawareness#madelinesmission#rarediseaseawareness#pkan