@survivingclusterheadacheSurviving Cluster Headaches

28 yr old living with cluster headaches the most painful condition in the world

card updated Oct 6, 2026 · 10 clips parsed · following 38 · 1,600,000 likes total

Engagement7.71%normal range

Account summary

@survivingclusterheadache has 24,400 followers and 14 videos. Across the 10 parsed clips the average is 687,260 views and 50,318 likes. Engagement to views is 7.71%, which is normal range for TikTok. On the newer half of the feed the response is falling (−6.22 pp). Posts roughly 1.4 times a week. An average clip reaches 2817% of the follower count.

Followers

24.4K

+0 in period

Engagement

7.71%

−6.22 pp newer half

Average views

687.3K

median 247.7K

Likes per clip

50.3K

774 comments avg

Shares / saves

1.9K / 4K

0.59% of viewers save

Posting rate

1.4 / wk

reach 2817% of followers

Latest clips

10 collected

#greenscreenvideo #fyp #viral #creatorsearchinsights #support #cluster — @survivingclusterheadache

583.2K1:31#greenscreenvideo #fyp #viral #creatorsearchinsights #support #clusterheadache #chronicpain #chronicillness #awareness #18.3K3171K1.9K

Replying to @jack How do you know when a #ClusterHeadache is about to — @survivingclusterheadache

297.5K1:20Replying to @jack How do you know when a #ClusterHeadache is about to start? #chronicillness #viral #creatorsearchinsig11.2K449169882

Replying to @not_rayxirin I also have another condition called hyrdohi — @survivingclusterheadache

158.6K2:31Replying to @not_rayxirin I also have another condition called hyrdohidrosis which is over active sweat glands that affe1.9K14022103

Quick little update. Been such an amazing past couple days being pain — @survivingclusterheadache

338.8K2:26Quick little update. Been such an amazing past couple days being pain free, little all I can ask for. Hopefully my cycle6.9K342576560

I know its long, but i felt obligated to share for all the sufferers o — @survivingclusterheadache

118.6KI know its long, but i felt obligated to share for all the sufferers out there. Please take the time to read if you can,1.1K4775145

Cluster headaches are an indescribable hell #clusterheadaches #cluster — @survivingclusterheadache

3.4M1:44Cluster headaches are an indescribable hell #clusterheadaches #cluster #headache #fyp #viral #hope #fypシ゚viral #ch #warr401.4K4.1K14.5K31.9K

🍄‍🟫 for Cluster Headaches?? #clusterheadaches #cluster #fyp #clusterhe — @survivingclusterheadache

97.4K4:58🍄‍🟫 for Cluster Headaches?? #clusterheadaches #cluster #fyp #clusterheadache #pain #chronicpain #chronicillness #awarene1.6K8948153

Thank you to every single person who has shown love or support it mean — @survivingclusterheadache

1.6M5:03Thank you to every single person who has shown love or support it means the world to me! Here is the full post from the 54.6K1.6K2K4K

Sumatriptan has been a life savor! Dont know what im gonna do when i g — @survivingclusterheadache

197.8K7:58Sumatriptan has been a life savor! Dont know what im gonna do when i go through my last 3 injections. I really really ho5.4K599216515

From a great documentary from a couple years ago about cluster headach — @survivingclusterheadache

80.7K2:50From a great documentary from a couple years ago about cluster headaches called “Fighting Shadows” #ch #clusterheadaches8184766117

Engagement per clip

10 parsed clips · newest on the right · click a bar to open the clip peak: 12.4% ER

Aug 1Aug 11Sep 21

Date	Views	Likes	Comments	Shares	Saves	ER
Sep 21, 2024	583,200	18,300	317	1,030	1,948	3.37%
Aug 23, 2024	297,500	11,200	449	169	882	3.97%
Aug 15, 2024	158,600	1,932	140	22	103	1.32%
Aug 13, 2024	338,800	6,883	342	576	560	2.30%
Aug 11, 2024	118,600	1,082	47	75	145	1.02%
Aug 10, 2024	3,400,000	401,400	4,129	14,500	31,865	12.35%
Aug 9, 2024	97,400	1,562	89	48	153	1.74%
Aug 6, 2024	1,600,000	54,600	1,580	1,995	4,028	3.64%
Aug 1, 2024	197,800	5,407	599	216	515	3.15%
Aug 1, 2024	80,700	818	47	66	117	1.15%