@ndssorgNational Down Syndrome Society

creating a world where individuals with Down syndrome thrive

card updated Sep 20, 2026 · 13 clips parsed · following 114 · 13,600,000 likes total

Engagement21.87%above average

Account summary

@ndssorg has 293,400 followers and 302 videos. Across the 13 parsed clips the average is 3,770,839 views and 788,232 likes. Engagement to views is 21.87%, which is above average for TikTok. On the newer half of the feed the response is falling (−1.66 pp). An average clip reaches 1285% of the follower count.

Followers

293.4K

history is still being collected

Engagement

21.87%

−1.66 pp newer half

Average views

3.8M

median 11.6K

Likes per clip

788.2K

7.7K comments avg

Shares / saves

29K / 43.7K

1.16% of viewers save

Posting rate

—

reach 1285% of followers

Latest clips

13 collected

Charlotte got her lifesaving transplant, but what she learned about th — @ndssorg

269.5K2:30Charlotte got her lifesaving transplant, but what she learned about the organ transplant system afterward led her to fig70.2K1.1K3.7K3.3K

Happy Mother’s Day to all of the moms and mother figures in our commun — @ndssorg

7.7K0:45Happy Mother’s Day to all of the moms and mother figures in our community! 🩵💛 We hope you feel loved and cherished today37222114

Let’s learn from the lived experiences of people with Down syndrome an — @ndssorg

13.6K0:26Let’s learn from the lived experiences of people with Down syndrome and work to create a more inclusive, equitable, and 75293928

This World Down Syndrome Day, we’re #TogetherAgainstLoneliness! Amanda — @ndssorg

7K1:26This World Down Syndrome Day, we’re #TogetherAgainstLoneliness! Amanda’s son, Micah, has a dual diagnosis of Down syndro127309

Using disability-related words as insults is a thing of the past. Upda — @ndssorg

475.7K1:31Using disability-related words as insults is a thing of the past. Update your language to build a more equitable world f73.4K3077.6K5.8K

Did you know that almost half of all infants born with Down syndrome h — @ndssorg

5.8K0:28Did you know that almost half of all infants born with Down syndrome have a heart condition? ❤️‍🩹 As American Heart Mont84705

This Valentine’s Day, meet Nick and Taylor! They have been long-time a — @ndssorg

11.1KThis Valentine’s Day, meet Nick and Taylor! They have been long-time advocates for the Down syndrome community, attendin41672318

Today we celebrate Charlotte’s Heartiversary! ❤️‍🩹 14 years ago, she r — @ndssorg

11.6K0:45Today we celebrate Charlotte’s Heartiversary! ❤️‍🩹 14 years ago, she received a life-saving heart transplant. Unfortunat1K244245

While doctors may want to provide effective care, they may not always — @ndssorg

10K0:30While doctors may want to provide effective care, they may not always understand how having Down syndrome impacts adult 2924510

Meet Aubry Alldredge, author of I Have a Six Pack! We were honored to — @ndssorg

9K2:14Meet Aubry Alldredge, author of I Have a Six Pack! We were honored to have Aubry and her family with us at this year’s N33512611

Our negative assumptions about people with Down syndrome can lead us t — @ndssorg

34.6M1:30Our negative assumptions about people with Down syndrome can lead us to treat them in such a way that these assumptions 7M49.7K192.6K457.3K

Just stop using it! 🛑 #downsyndromeawareness — @ndssorg

9.1M0:17Just stop using it! 🛑 #downsyndromeawareness1.8M41.7K117.5K65.4K

We don’t get it either! #downsyndrome #learnontiktok — @ndssorg

4.5M0:32We don’t get it either! #downsyndrome #learnontiktok1.3M6.6K55.3K36.4K

Engagement per clip

13 parsed clips · newest on the right · click a bar to open the clip peak: 30.3% ER

Aug 7Feb 14Aug 30

Date	Views	Likes	Comments	Shares	Saves	ER
Aug 30, 2026	269,500	70,200	1,092	3,699	3,310	27.83%
May 10, 2026	7,686	372	2	21	14	5.14%
Apr 8, 2026	13,600	752	9	39	28	5.88%
Mar 17, 2026	6,985	127	3	0	9	1.86%
Mar 13, 2026	475,700	73,400	307	7,593	5,759	17.09%
Feb 28, 2026	5,792	84	7	0	5	1.57%
Feb 14, 2026	11,100	416	7	23	18	4.02%
Jan 30, 2026	11,600	1,032	24	42	45	9.47%
Dec 26, 2025	9,978	292	4	5	10	3.02%
Dec 8, 2025	8,962	335	12	6	11	3.94%
Mar 14, 2024	34,600,000	7,000,000	49,700	192,600	457,263	20.93%
Oct 15, 2020	9,100,000	1,800,000	41,700	117,500	65,433	21.53%
Aug 7, 2020	4,500,000	1,300,000	6,610	55,300	36,403	30.26%