@mackenzies_eb_journeyMackenzie’s EB Journey 🦋

Sharing Mackenzie's story to raise awareness for EB 🦋 Medical Mama 📍Wisconsin

card updated Sep 28, 2026 · 13 clips parsed · following 64 · 2,600,000 likes total

Engagement8.48%above average

Account summary

@mackenzies_eb_journey has 50,800 followers and 194 videos. Across the 13 parsed clips the average is 1,666,597 views and 136,534 likes. Engagement to views is 8.48%, which is above average for TikTok. On the newer half of the feed the response is falling (−2.64 pp). Posts roughly 0.2 times a week. An average clip reaches 3281% of the follower count.

Followers

50.8K

+100 in period

Engagement

8.48%

−2.64 pp newer half

Average views

1.7M

median 10.3K

Likes per clip

136.5K

1.4K comments avg

Shares / saves

3.4K / 4.7K

0.28% of viewers save

Posting rate

0.2 / wk

reach 3281% of followers

Latest clips

13 collected

Heartbreaking, exhausting, intricate, terrifying, mundane, long, borin — @mackenzies_eb_journey

5761:03Heartbreaking, exhausting, intricate, terrifying, mundane, long, boring, normal. This is a dressing change for my daught80712

I know this might be surprising for some, especially considering all o — @mackenzies_eb_journey

10.3K1:07I know this might be surprising for some, especially considering all of the complexities of EB. You might think that the75218419

This is a tiny snippet of my brain every day. I think about these ques — @mackenzies_eb_journey

118.6K0:59This is a tiny snippet of my brain every day. I think about these questions daily. Especially the ones at the end. This6.4K12896164

What can I say? I love a good theme. And I get ALL in for birthdays 🥰 — @mackenzies_eb_journey

4.2K0:55What can I say? I love a good theme. And I get ALL in for birthdays 🥰 We leaned in hard to the Halloween birthday for ye30010110

Ever wonder how many medications are we managing for Mackenzie’s EB? W — @mackenzies_eb_journey

6.5K0:37Ever wonder how many medications are we managing for Mackenzie’s EB? Watch until the end to find out! And this doesn’t e51913614

Epidermolysis Bullosa has been in our lives for almost 2 years now. La — @mackenzies_eb_journey

11K0:44Epidermolysis Bullosa has been in our lives for almost 2 years now. Lately I’ve been thinking a lot about life before. 5457416

Another day, another dressing change. And this time, with an injection — @mackenzies_eb_journey

39.9K1:15Another day, another dressing change. And this time, with an injection 😭 This is our normal. Mackenzie can’t go more tha1.9K312644

I absolutely adore the age when babies start talking 🥰 Language acquis — @mackenzies_eb_journey

8.7K0:55I absolutely adore the age when babies start talking 🥰 Language acquisition is so fun to listen to and/or watch, and al818461526

Feeding Mackenzie has always been a challenge because of complications — @mackenzies_eb_journey

8K0:56Feeding Mackenzie has always been a challenge because of complications from Epidermolysis Bullosa (EB). She gets blister5349824

Summer was so hard for us with Kenzie’s complications from EB, but it — @mackenzies_eb_journey

4K0:22Summer was so hard for us with Kenzie’s complications from EB, but it definitely wasn’t all bad! #family #summermashup 218605

One hour. The first few pictures were taken at 3:47 pm. My husband cal — @mackenzies_eb_journey

19.4M0:49One hour. The first few pictures were taken at 3:47 pm. My husband called the paramedics at 4:45 pm. In one hour our ch1.7M16.8K43K59.2K

I’ve received several questions about Mackenzie’s type of EB and how i — @mackenzies_eb_journey

1.3M2:30I’ve received several questions about Mackenzie’s type of EB and how it affects her skin. I love that so many people are44.2K8729441.5K

Mackenzie is our butterfly baby 🦋 She has recessive dystrophic epiderm — @mackenzies_eb_journey

754.1K0:42Mackenzie is our butterfly baby 🦋 She has recessive dystrophic epidermolysis bullosa, which makes her skin extremely fr18.7K515285571

Engagement per clip

13 parsed clips · newest on the right · click a bar to open the clip peak: 15.3% ER

Apr 17Sep 7Sep 27

Date	Views	Likes	Comments	Shares	Saves	ER
Sep 27, 2026	576	80	7	1	2	15.28%
Sep 23, 2026	10,300	752	18	4	19	7.51%
Sep 20, 2026	118,600	6,362	128	96	164	5.55%
Sep 19, 2026	4,158	300	10	1	10	7.48%
Sep 17, 2026	6,472	519	13	6	14	8.31%
Sep 12, 2026	11,000	545	7	4	16	5.05%
Sep 7, 2026	39,900	1,918	31	26	44	4.95%
Sep 6, 2026	8,667	818	46	15	26	10.14%
Sep 5, 2026	7,954	534	9	8	24	6.93%
Sep 2, 2026	4,035	218	6	0	5	5.55%
Apr 13, 2026	19,400,000	1,700,000	16,800	43,000	59,235	9.07%
Apr 27, 2025	1,300,000	44,200	872	944	1,495	3.54%
Apr 17, 2025	754,100	18,700	515	285	571	2.59%