@haidynshopeCarrie + Haidyn 🦋

C A R R I E + H A I D Y N Cure Sanfilippo Syndrome •thankful🦋•

card updated Oct 1, 2026 · 10 clips parsed · following 2,778 · 72,600,000 likes total

Engagement3.71%normal range

Account summary

@haidynshope has 1,300,000 followers and 3,365 videos. Across the 10 parsed clips the average is 289,490 views and 10,609 likes. Engagement to views is 3.71%, which is normal range for TikTok. On the newer half of the feed the response is holding steady (+0.22 pp). Posts roughly 0.5 times a week. An average clip reaches 22% of the follower count.

Followers

1.3M

history is still being collected

Engagement

3.71%

+0.22 pp newer half

Average views

289.5K

median 254.7K

Likes per clip

10.6K

100 comments avg

Shares / saves

33 / 139

0.05% of viewers save

Posting rate

0.5 / wk

reach 22% of followers

Latest clips

10 collected

She forces me to break every philosophical understanding I thought I h — @haidynshope

39.4K0:40She forces me to break every philosophical understanding I thought I had, and to ask whether we believe the purpose of h2.8K76248

Haidyn’s great-aunt Pam & a younger Haidyn 💜 There’s a treatment for S — @haidynshope

238.1KHaidyn’s great-aunt Pam & a younger Haidyn 💜 There’s a treatment for Sanfilippo Syndrome Type A now (FAYUVI™ released 9/9.4K12136148

127.1K🖤3.2K361746

In case you were wondering how tall Haidyn is now •• the first picture — @haidynshope

384.7KIn case you were wondering how tall Haidyn is now •• the first picture is a good reference. I’m about 5’4. Also, she ma12.3K11329115

Despite all that’s lost, we are so thankful that she is still here wit — @haidynshope

430.5KDespite all that’s lost, we are so thankful that she is still here with us.🩵 Inspired by @Saving Veda #sanfilipposyndro18.5K8058225

Tonight, on our evening walk I felt led to elaborate on why we rarely — @haidynshope

559.6KTonight, on our evening walk I felt led to elaborate on why we rarely share. The last six years, since H’s Sanfilippo d19.8K18665265

A little bit of life lately. 💜 — @haidynshope

375.7KA little bit of life lately. 💜15.4K14230181

When I was growing up, he played this song all the time. 🖤 — @haidynshope

230.5KWhen I was growing up, he played this song all the time. 🖤3.3K161563

I can’t watch this without crying — we had no idea Sanfilippo syndrome — @haidynshope

238K0:09I can’t watch this without crying — we had no idea Sanfilippo syndrome existed. My baby. 🩷9.3K6738141

We are good. We are enjoying the present moment and each other, while — @haidynshope

271.3K0:15We are good. We are enjoying the present moment and each other, while planning big sister’s graduation/college. We love 12K16442161

Engagement per clip

10 parsed clips · newest on the right · click a bar to open the clip peak: 7.4% ER

May 7Jul 15Sep 24

Date	Views	Likes	Comments	Shares	Saves	ER
Sep 24, 2026	39,400	2,840	76	2	48	7.41%
Sep 18, 2026	238,100	9,402	121	36	148	4.01%
Aug 10, 2026	127,100	3,246	36	17	46	2.60%
Aug 8, 2026	384,700	12,300	113	29	115	3.23%
Jul 15, 2026	430,500	18,500	80	58	225	4.33%
Jul 9, 2026	559,600	19,800	186	65	265	3.58%
Jun 19, 2026	375,700	15,400	142	30	181	4.14%
Jun 16, 2026	230,500	3,343	16	15	63	1.46%
May 8, 2026	238,000	9,258	67	38	141	3.93%
May 7, 2026	271,300	12,000	164	42	161	4.50%