@dnak1000Darin Nakakihara

Sharing my ALS journey

card updated Nov 5, 2026 · 10 clips parsed · following 17 · 2,700,000 likes total

Engagement3.64%normal range

Account summary

@dnak1000 has 58,600 followers and 519 videos. Across the 10 parsed clips the average is 455,980 views and 15,898 likes. Engagement to views is 3.64%, which is normal range for TikTok. On the newer half of the feed the response is falling (−2.93 pp). Posts roughly 0.6 times a week. An average clip reaches 778% of the follower count.

Followers

58.6K

+0 in period

Engagement

3.64%

−2.93 pp newer half

Average views

456K

median 157.7K

Likes per clip

15.9K

148 comments avg

Shares / saves

555 / 1K

0.23% of viewers save

Posting rate

0.6 / wk

reach 778% of followers

Latest clips

10 collected

Two teachers from the same school staff diagnosed with ALS… what are t — @dnak1000

206.6K0:11Two teachers from the same school staff diagnosed with ALS… what are the odds? This question has been weighing on my min2.4K12632132

When I heard about Eric Dane, it stopped me in my tracks. As someone l — @dnak1000

215.6K0:37When I heard about Eric Dane, it stopped me in my tracks. As someone living with ALS, this one felt personal. Hearing ab3.7K5341174

When people ask how I can still be grateful to Jesus Christ while I’m — @dnak1000

154.6K0:36When people ask how I can still be grateful to Jesus Christ while I’m dying from ALS, I tell them this: I don’t thank Hi1.4K272167

One year. Same man. Same heart. Completely different body. This is wha — @dnak1000

160.7K0:16One year. Same man. Same heart. Completely different body. This is what ALS progression looks like in real life. In the 1.5K151166

96.5K0:25ALS Tried to Steal My Singing Joy… My AI Avatar Said Not Today 🎶1K12541

Living with ALS has a way of stripping life down to its essentials — @dnak1000

68K0:15Living with ALS has a way of stripping life down to its essentials58915629

ALS took a lot… but it didn’t take gratitude. Living with amyotrophic — @dnak1000

80.6K1:04ALS took a lot… but it didn’t take gratitude. Living with amyotrophic lateral sclerosis (ALS), Lou Gehrig’s disease, mot1.5K45649

When Your ALS Doctor Says 2–5 Years… and You Choose Joy Anyway — @dnak1000

96.5K0:09When Your ALS Doctor Says 2–5 Years… and You Choose Joy Anyway2.2K291579

2 years ago, I had no idea what was coming. 2 days before my diagnosis — @dnak1000

3.3M0:312 years ago, I had no idea what was coming. 2 days before my diagnosis with ALS (amyotrophic lateral sclerosis), I was s142.6K1.1K5.4K9.6K

ALS appointments aren’t about treatment — they’re just data points on — @dnak1000

180.7K0:03ALS appointments aren’t about treatment — they’re just data points on my decline. No hope, just charts. But I keep showi1.9K30675

Engagement per clip

10 parsed clips · newest on the right · click a bar to open the clip peak: 4.5% ER

Oct 29Feb 9Mar 5

Date	Views	Likes	Comments	Shares	Saves	ER
Mar 5, 2026	206,600	2,396	126	32	132	1.24%
Feb 20, 2026	215,600	3,712	53	41	174	1.77%
Feb 12, 2026	154,600	1,438	27	21	67	0.96%
Feb 11, 2026	160,700	1,544	15	11	66	0.98%
Feb 9, 2026	96,500	1,018	12	5	41	1.07%
Feb 2, 2026	68,000	589	15	6	29	0.90%
Jan 1, 2026	80,600	1,519	45	6	49	1.95%
Dec 18, 2025	96,500	2,229	29	15	79	2.36%
Nov 8, 2025	3,300,000	142,600	1,126	5,407	9,569	4.52%
Oct 29, 2025	180,700	1,933	30	6	75	1.09%